index

Index (by reference number)

A
Adeno-carcinomas
        prostate hyperplasia, 1
        rectum, 2
Age at diagnosis
        75 to 95,         91
        65 to 75,         52
        55 to 65,         28, 30, 69, 106, 159, 161, 163, 176
        45 to 55,         1, 15, 16, 18, 29, 31, 32, 38, 46, 40, 45, 47,
                                48, 49, 53, 60, 67, 73, 74, 75, 76, 80, 83, 90,
                                96, 134, 160, 167
        30 to 45,                 3, 5, 19, 20, 23, 27, 41, 42, 44, 51, 56, 57,
                                58, 59, 62, 65, 72, 84, 88, 89, 91, 97, 101,
                                108, 131, 135, 136, 141, 142, 162, 177
        20 to 30,                9, 22, 24, 66, 82, 103, 104, 109, 114, 115,
                                117, 118, 120, 121, 122, 128, 138, 155, 168,
                                171, 172, 175, 179
        10 to 20,                 7, 10, 12, 13, 132, 133, 140, 148, 151, 152,
                                153, 154, 169, 174
         1 to 10,                 126, 127
Alternative cancer treatments
                American Indian tepee ceremony, 147
                blood purification, 148
                crystals, 64
                Dr Yoshi Dhohden, 8
                faith in God, 154, 156, 157, 167
                homoxitology, 102
                huna kane, 147
                hypnosis, 147
                neuro link, 102
                past life encounters, 147
                psychic reading, 147
                rebirthing, 147
                sea water, 167
                shaman, 147
                sweat lodge, 147
                tarot reading, 147
                trance medium message, 147
Amputation
                above knee, 178
                adjustment to, 168, 178
                lower arm, 168
Anterior resection of the rectum, 2
Anthologies
                Beating our breasts, 18, 47, 51, 55, 63, 64, 70, 71, 76, 77,
                78, 83, 92,90, 95, 96, 110, 158, 180
                Breast cancer network NZ, 16, 36, 60, 67, 69, 84, 85, 89, 91,
                136, 181
                CanTeen, 109, 114, 115, 125, 128, 133, 140, 151, 169, 174,
                175, 182
                I feel lucky, 14, 35, 66, 94, 112, 139, 155, 170, 178, 183
                Your are not alone, 21, 25, 26, 34, 37, 46, 87, 185
Art and cancer experiences
        dance, describing choreography, 18
        exhibitions, relating to a
                                I feel lucky, 183
                                Livlif project, 65
                                The big c, 117, 118
                                Touching the unthinkable, 54, 185
                                Tuafafine, 59
                        1/9, 65
        music, describing composition, 196
        photographic exhibition, 117, 118
        poetry, 27, 111, 145, 146
        sculptural works, 54, 65, 185
Autologous bone marrow transplant, 116
Autologous stem cell transplant, 144
B
Basal cell carcinoma, 4
Blood, significance for the patient,
        artificially raise white blood cell count, 67
        calcium in, 16
        clots, 169
        continual tests, 13, 108, 124, 132
        donation, 122, 142
        eyes filled with, 132
        filtered, for transfusion, 124
        haemorrhaging , 2, 9, 109, 122
        transfusion, 63, 108, 120, 124, 130, 132, 142, 147, 149, 158
        Leukaemia and blood foundation of New Zealand, 131, 144
        low platelet count, 132
        low blood count, 144, 3
        low white blood count, 67, 101
        receiving blood too fast, 116, 130
        susceptibility to cancer by blood type, 93
        urinating blood, 165
        Yersinia enterocolitis, 121Bone marrow
        cancer in, 175
        transplant, 116, 121, 132
Bowel, issues significant for patient
        cancer, 5, 6, 176
        colostomy, 164
        ileostomy, 2, 36
        rotting , 2
        surgery on
                                bypass from stomach to bowel, 176
        treatments effects on
                                constipation, 3, 79, 101
                                diarrhoea, 67, 45, 148, 162, 176
                                diarrhoea from radiation, 3, 45, 162
                                diarrhoea from chemotherapy, 79
                                impacted from radiation, 79
Bowel, issues significant for caregiver
        Irrigating patient bowel, 2
Brachytherapy, 163
Brain tumour
                all types, 7 - 14, 109
        chordoma, 109
        rare type, 109
Brain tumour, issues for cancer patient
        complementary treatments, 8
        death, quickly following diagnosis, 10
        death from, 10, 13
        inoperable, 8, 12
        misdiagnosis, 7, 13, 109
        recurring, 9, 13, 22
        remission, 8, 9, 11, 14
        school, attending, 7, 13
        stationary, 7, 12
        treatment effects
                                confidence loss, 109
                                hair loss, 9
                                head scars, 9
                                paralysis 9, 13
                                partial paralysis, 9, 109
                                speech problems, 13
        young patients, 7, 9, 10, 12, 13, 14, 109
Brain tumour treatments,
        biopsy, 145, 14
        chemotherapy, 7, 10, 13
        complementary, 8, 10
        craniotomies, 9
        intensive moderated radiotherapy, 9
        pad of fat implanted in brain to absorb radiation, 109
        physiotherapy, 13
        occupational therapy, 13
        palliative chemotherapy, 22
        radiation, 8, 9, 10, 13
        surgical removal, 22, 109
Breast, artificial [see prosthesis]
Breast cancer issues for patient [see also mastectomy]
        anxiety waiting for results, 15, 48
        clinical trial participation, 19, 20, 57, 67, 71
        cost of treatments, 19, 20, 42, 44, 73, 75
        feeling well with, 29, 30, 31, 36, 52
        hereditary/genetic
                                link to diagnosed cancer, 44, 53, 56, 62, 69,
                                82, 83, 90, 93, 97
                                concern passing on negative genes, 34, 56,62,
                                83
                        death of other family members, 44, 53, 56, 62,
                82, 83
        losing sexual organ, 17, 18, 35, 38, 40, 73
        misdiagnosis, 23, 24, 36, 42, 45, 49, 55, 60, 68, 70, 74, 116
        rehabilitation after mastectomy, 18, 135, 69
        terminal prognosis, 22, 24, 36, 79
        treatment effect
                adjustment to new appearance, 71, 73
                allergic reaction to chemotherapy, 70, 92
                depression, 70
                bladder control problems, 45, 67, 79
                bowel control problems, 45, 79
                fatigue, 89
                hair loss, 16, 17, 32, 45, 70, 88, 89
                hypercalcemia, 70
                irritable behaviour, 17
                limited arm movements, 18, 39
                lymphoedema, 91
                menopause, 17, 34, 73, 79
                nausea, 17, 59, 67, 79
                nerve damage, 73
                pain from reconstructive tissue site, 39, 40
                radiation burns, 67, 88
                sensitive eyes, 67
                vomiting, 45, 89
        young women and breast cancer, doctors attitude, 23, 42
Breast cancer impact on caregiver
        daughter, 44, 74
        husband, 21, 99, 100
Breast cancer impact on family, 83, 88
        daughter
                                early screening, 53, 56
                                entering high risk group, 44, 56, 69, 87, 97
                                feeling mothers lump, 50, 74
                                perspective, 44, 46, 50, 74
        father's perspective, 34
        husband, 24, 47, 99
                                perspective, 21, 27, 100
        sister's perspective, 87
        son's perspective, 37
Breast cancer, type of
        all, 15 to 100
        ductal carcinoma in situ, 80
        hereditary/genetic types
                        BRAC 1, 69, 97
                                HER 2 positive, 19, 20, 57,
        infiltrating ductile carcinoma, 45
        Inflammatory, 42
        lobular carcinoma, 73
Breast reconstruction [see also breast cancer treatments and mastectomy], 23, 30, 58, 92
        back muscle, 31, 39
        nipple tattoo, 39
        stomach tissue, 32, 59
        tissue expander, 80
        tram flap, 40
Breast cancer reconstruction, issues with,
        advantages, 31, 39, 40, 67, 80
        anti reconstruction, 41, 97
        disadvantages, 39, 40, 59
Breast cancer support group
        attend, 68, 94
        volunteer, 75
Breast cancer treatment [see also breast reconstruction and mastectomy],
        bilateral mastectomy, 91
        complementary, 17, 30, 33, 43, 45, 48, 49, 64, 78, 83, 89, 95
        double mastectomy, 18, 45, 55, 56, 71, 82, 97, 31
        lumpectomy, 16, 27, 28, 48, 49, 73, 74, 76, 78, 90, 91,
        mastectomy, 17, 19, 23, 24, 29, 30, 32, 36, 38, 39, 40, 42,
44, 49, 50, 51, 52, 53, 57, 58, 59, 62, 63, 66, 69, 70, 73, 75, 77, 79, 80, 81 to 85, 88, 89, 92, 94, 135, 136, 158
        partial mastectomy, 15, 95
        physiotherapy, 15
        prophylactic, 69
        radical mastectomy, 22, 67
        wedge, 52
Brother, twin perspective, 126

C

Cancer societies
                Can-Survive, 17
                counsellor, 55
                drivers, 63, 158
                librarian, 76
                        volunteers, 75, 124
CanTeen, impact on young people experiencing cancer
        activities, 109, 115, 121, 125, 126
        build confidence, 109
        coping with cancer 114
        helping process grief, 125, 126, 133
        members stories, 109, 114, 115, 121, 125, 126, 128, 133,
        140, 182, 184
        negative aspects, 114
        reducing isolation, 128, 133
        support from people who understand, 115, 182
Cancer patient roles,
        challenging doctor roles, 55, 62, 75, 145, 160
        doctor patient role, 49, 55, 60, 104
        role reversal, 16, 63, 124
        women in society, 104
Causes of cancer,
                personal belief
                                child outside marriage, 62
                                emotions guiding cancer, 102
                                personality type, 51
                                sinful behaviour, 149
                                stress, 17
        social belief
                                genetic disposition, 56, 62, 69, 93, 147
                                sunburn, 137
Cervical cancer 101 to 107
Cervical cancer issues,
                accountability, 102, 104, 105
        Cervical cancer enquiry, 104
        Cervical screening enquiry, 105
        changes to priorities, 101, 107
        death, 103
        impact on friends, 103
        isolation, 102, 104, 105, 107
        Maori screening, 106
        misread pap smear, 101, 102
        public awareness, 101, 102
        treatment effects, 101, 105
        unethical research, 104
        upheaval of New Zealand medical system, 104
Cervical cancer treatments
        Alternative treatments, 102
        Attitude to treatments, 101, 105
        Conservative treatment, 104
        Chemotherapy, 101, 103
        External radiotherapy, 101, 105
        Hormone replacement therapy, 101, 105
        Hysterectomy, 105
        Incomplete chemotherapy, 101
        Internal radiotherapy, 101, 105, 106
        Radical hysterectomy, 101
        Lletz surgery, 107
Chemotherapy administered to patients
        Adriamycin [see Doxorubicin]
        Amethopterin [see methotrexate]
        Arimidex [see Anastrozole]
        Anastrozole, 36
        Bleomycin, 13, 179
        Blenoxane [see Bleomycin]
        Cysplatin [see cisplatin]
        Cisplatin, 3, 13, 101, 153
        CDDP [see Cisplatin]
        Docetaxel [see Taxotere]
        Doxil [see Doxorubicin]
        Doxorubicin, 17, 49, 57, 67, 153, 154
        Etoposide, 13
        Etopophos [see Etoposide]
        Goserelin, 1, 160
        Herceptin, 19, 20, 42, 44, 57, 75
        Hydroxydaunomycin [see Doxorubicin]
        Hydroxydoxorubicin [see Doxorubicin]
        Liposomal [see Doxorubicin]
        Methotrexate, 79, 145, 153, 154
        Nolvadex [see Tamoxifen]
        Platinol [see Cisplatin]
        Rubex [see Doxorubicin]
        Taxotere, 44, 57, 67, 75
        Tamoxifen, 1, 63, 71, 73, 74, 78, 92, 158, 160, 15, 17, 36, 38
        Toposar [see etoposide]
        Trastuzumab [see Herceptin]
        VePesid [see Etoposide]
        Vincristine
        Zoladex [see goserelin]
Chemotherapy, general
        effect of [see individual cancer by name at issues at treatment effect]
                        first time chemotherapy used in Australasia, 171
                        pre operative, 22, 108, 145
Childhood cancer
        stories for children, 127
Chondrosarcoma, 108
Chordoma, 109
City, cancer patient location
        Auckland, 142
        Balclutha, 128
        Blenheim, 121
        Christchurch, 65, 116, 120, 121
        Dannevirke, 9
        Dunedin, 124
        Levin, 164
        Lower Hutt, 167
        Matamata, 132
        Poinui Island, 176
        Porirua, 157
        Napier, 113
        Nelson, 115, 157
        New Plymouth, 166
        Northland, 48
        Rotorua, 143
        Snells beach, 157, 156
        Wellington, 157
        Warkworth, 179Clinical trials
        chemotherapy, 67
        ethics of participant selection, 19
        participating in, 20, 71
Colon cancers, 110, 111
                impact of, 110, 111
                poetry, 111
                scar, 110
                thoughts about dying, 110, 111
Colostomies, attitude with, 164
Country, cancer patient location [excluding New Zealand]
        Fiji, 108
        Indonesia, 1,
        Japan, 145, 27
        London, 47
        Singapore, 49
Coma, patient in, 128, 149, 161
Communication
        aiding the healing process, 92
        between hospitals during treatments, 121
        being open about needs, 15, 21
        wife and husband, 21, 99, 100, 144
Complementary treatments, 8
        education programmes
                                Ayurvedic medical centre, 78
                                Body-for-life, 85
                                CanSurvive, 17
                Kubler Ross, 121
                Look-good-feel-better, 17, 70, 86
                                Lucas Klinik, 64
                Yarra Valley Centre, 33
        treatment types
                                antioxidants, 30
                                aromatherapy, 8
                                counselling, 17
                                diet, changes,1, 10, 30, 32, 33, 69, 78, 89, 95,
                                102, 118, 135, 136, 148, 160, 162, 167
                                dream work, 64
                                feldenkrais, 8
                                herbs, 1, 5, 64
                                herbal liver compress around abdomen, 64
                                homeopathy, 102, 134
                                immune (enhancement), 148, 30
                                journaling, 69
                                meditation, 8, 33, 64, 69, 147, 148
                                naturopathy, 30, 78
                                organic food, 32, 89, 135, 136
                                osteopathy, 8
                                positive affirmations, 8
                                prayer, 8
                                Qi Gong, 102
                                reflexology, 8
                                restoritative yoga poses, 78
                                self hypnosis, 79, 108, 116, 147
                                supplements, 1, 8, 30, 32, 89, 102, 132, 135,
                                136, 160
                                visualisations, 8, 78
Confidence loss, 109, 150, 166
Coping strategies
        acceptance, death, 79
        acceptance, having cancer, 16, 92
        adjustment, 63, 145, 158
        humour, 4, 29, 58, 71, 73, 107, 148,150, 166, 171
        positive thinking, 6, 8, 22, 30, 36, 78, 91, 95, 99, 100, 108,
        113, 151, 159, 171, 173, 179
D

Date of diagnoses
        1960 - 1975
                breast, 72, 81
                squamous cell, 167
                throat, 173
        1976 - 1980
                bowel, 173
                breast, 51, 52
                leukaemia, 130
                leiomyosarcoma, 122
                multiple myeloma, 143
                non Hodgkin's lymphoma, 148
                osteosarcoma, 154
        1981 - 1985
                brain, 13
                breast, 45, 62, 79
                cervical, 104
                colon, 111
                dermatofibrosarcoma , 112
                Hodgkin's disease, 116
                leukaemia, 124
                melanoma, 137
                squamous cell carcinoma, 166
        1986 - 1990
                brain, 8
                breast, 27, 30, 49, 63, 68, 78, 90, 92, 95
                cervical, 106
        1991 - 1995
                brain, 9
                breast, 36, 48, 55, 65, 66, 71, 73, 84, 96
                cervical, 105
                Hodgkin's disease, 117, 118
                leukaemia, 132
        1996 - 2000
                breast, 1, 3, 4, 15, 28, 29, 31, 76, 85, 144
                pancreatic, 156, 157
                prostate, 159 to 162
        2000 - 2002
                breast, 15, 17, 19, 22, 23 40, 54, 56, 58, 59,
                60, 69, 80, 89, 98
                cervical, 101, 102
                osteosarcoma, 152
                testicle, 169, 171
        2003 - 2006
                breast, 24, 53, 57, 59, 67, 99, 100
                Hodgkin's lymphoma, 121
                liver, 133
                melanoma of lung, 139
                non Hodgkin's lymphoma, 145
                synovial sarcoma, 168
Daughter as caregiver of mother
        changing roles, 2, 50, 74
        dying as mother dying, 2, 74
Death from cancer
        adenocarcinoma of rectum, 3
        bowel, 6, 173
        brain, 10, 13
        breast, 16, 27, 74
        cervical, 103
        Hodgkin's lymphoma, 121
        leukaemia, 124, 125, 130, 132
        liver, 133
        lung, 134
        multiple myeloma, 143
        non Hodgkin's lymphoma, 144, 149
        osteosarcoma, 153, 154
        pancreas, 156, 157
        prostate, 161
        rectum, 164
        synovial sarcoma, 168
        testicle, 172
        unnamed cancer, 176,
Death, themes [see also euthanasia], 149, 156, 157, 161, 165, 168, 171
        describe time of death, 154, 156, 157, 161, 168, 176
        euthanasia, 2
        grief, 10, 74
        hospice care, 149, 157
        impact on family, 10, 74
        live till the end, 6
        of child, impact on family, 10, 161, 168
        public stigma, 164Depression, 17, 22, 65, 70, 79, 116, 132, 162, 166
Dermatofibrosarcoma, 112
E

Employment issues because of cancer
        career development, 60
        difficulty working, 116
        discrimination, 148, 167
        employer support, 68
        opportunities, 22, 60
        privacy in workplace, 163
        redundancy, 98, 167
        stopped working, 142
        work throughout treatments, 28, 121, 143
        working after treatments, 22, 122, 144, 150
Euthanasia [see also death from cancer], 2
        legalisation of, 83Ewing's sarcoma, 113 to 115
        remission, 113, 114
        terminal with, 115
Exercise and sport, patient participation
        athletics, 169
        Contour's women's triathlon, 59
        dragon boating, 88
        Fun run day, 130
        Pilates, 43
        running, 58, 85, 130, 174
        Run to heal, 43
        Special K women's triathlon, 22, 59
        walking, 43, 143
        yoga, 43
Exercise and sport issues for patient,
                achievements post treatments, 169
                impact of cancer on sport, 151, 169
                limited physical abilities from treatments, 13, 124, 161, 166,
                to vent, 171
Eyes
        biopsy, 145
        deteriorating eyesight as symptoms, 145
        deteriorating eyesight treatment effect, 145,
        filled with blood, treatment effect, 132
        operation, 145
        sensitive, reaction to Viagra, 162
        squint, symptom of brain tumour, 7
        watery eyes, treatment effect, 45

F

Father's perspective, 34
Fear
        chemotherapy, 74
        hospitals, 31
        surgery, 109, 169
Film, short, 152
Friend's perspective, 25, 26, 61, 103, 172
Fundraising for equipment and treatments, issues,
                diagnostic equipment, ultrasound machine, 7
                personal debt, 42
                treatments, 44, 57
G

Gall bladder removal, 168Grief,
        issues adding to a patients grief, 13, 121, 124
        recurring grief throughout cancer, 143
        support for person, 125, 126
        themes of, 74, 87, 168

H
Hair loss, treatment effect, [see also wig, see also turban], 116, 117, 118, 119, 121, 127, 132, 135, 136, 168, 179
        adjusting, 132, 151, 179
        multiple times, 142
        radiation induced, 142
        total body, 16, 148
Herceptin,
        ethics of participant selection, 19, 42, 44, 57
        government role, public perception, 19, 42, 44, 57
        palliative chemotherapy, 75
        participant on trial, 20
Hip replacement, 175Hodgkin's disease, 116 to 118
        severe reaction to treatments, 116
        shunt, 116
Hodgkin's lymphoma, 119 to 121Hospice care, 74
Hospital, patient admitted to for treatments
                Ashford, 179
                Auckland, 18, 84, 131, 150
                Bowen, 52, 55
                Burwood, 108
                Christchurch, 10, 116, 121
                Georgetown hospital, USA, 78
                Greenlane, 22
                Hamilton, 132, 143
                Hutt, 51, 95
                Japanese, 145
                Mater hospital, Sydney, 86
                National women's, 104
                New Plymouth, 166
                North Shore, 80
                Otago, 77
                Radcliffe, England, 8
                Starship, 152 to 153
                Wellington, 18, 28, 38, 63, 158, 15
Husband of cancer patient, impact of, 143, 156
        changes to perspective, 21
        death of wife, 141
        grief, 141, 168
        healing, 141, 168
        household chores, 89, 136, 168
        impact on life, 21, 100, 141, 168
        new love, 141, 168
        supportive acts, 5, 21, 51, 76, 83 98
Hysterectomy, 49, 105
I
Identity loss, 124
Infertility, from treatments
        birth to dead husbands baby, 134
        cryopreservation, semen, 148
        discontinue treatments to have baby, 122
        in vitro fertilisation, 134
        menopause, 17, 34, 73, 79
        ovaries removed, 155
        surrogacy, 22
Information
        internet, 36, 159, 160
Impact of cancer [see also long term survivors; see also remission]
        changes in life priorities, 14, 17, 60, 61, 96, 149, 3, 113
                        change career, 17, 60, 104
                        healthier lifestyle, 22, 36, 43, 58, 59, 85, 96, 113, 159
                        holiday, 3, 17
                        move back to New Zealand, 108, 179
                        new interests, 113
                        resign for job, 108
                        retire, 96
                        sell business, 3
                        spend more time with family, 3, 113, 145
                        sport, 151
                        start living, 85
        changes in perspectives, 12, 14, 48, 54, 142, 162
                                        accept help, 90,96
                                        deep contentment, 66
                                        less positive view of the world, 21
                                        slow down, 90, 113
        financial pressures, 88
        independence, 104
                                        Government support, 121
                                        parents as caregivers for adults, 121, 145
        living with an uncertain future, 15, 79, 145
        opportunities, 22, 36, 58, 59, 96, 104, 114
        physical changes, 13, 145
        relationships, 7, 99, 145
Incontinence from treatments, 162
Infection
        chest, 132
        bladder, 105, 179
        mouth, 79
        port-a-cath, 114, 140
        recurrent, 76, 132
        respiratory, 121
        sepsis, 2
Isolation issues
        alone, 91, 88
        anxiety from, 148
        during treatments, 106, 108, 116
        geographical location, 121
        neutropenia, 108, 116
        reducing isolation, support for, 128
Insomnia, 45, 148

K

Knee replacement, 151
L
Laryngectomy, 6
Late effects from treatments
        concern about, 114
        deteriorated eyesight, 116
        heart problems, 74
        not enough answers, 114
        pain, 116
        reduced lung capacity
        tires easily, 116
        weakened body
Leiomyosarcoma, 122, 123
        defer treatment to get pregnant, 122
        inoperable, 123
        radio ablation technologies, 123
Limb salvage surgery, 153
Liver cancer, 133
Lletz, 107
Long-term survivors of cancer [see also remission, see also impact of cancer]
        breast, 30, 41, 47, 49, 63, 65, 72, 82, 84, 90, 95, 96
        colon, 111
        Ewing's sarcoma, 113
        Hodgkin's disease, 117, 118
        leukaemia, 126, 127, 131
        melanoma, 137
        squamous cell carcinoma, 166, 167Lung
        cancer, 32, 134 to 136
        melanoma, 139
        removed, half of, 136
        smoking stigma, 136
Leukaemia, 124 to 132
        acute lymphoblastic leukaemia, 132        acute lymphocytic leukaemia [see acute lymphoblastic at
        leukaemia]        acute myeloid leukaemia, 128, 131                chronic myeloid leukaemia, 124, 130
chronic myelogenous leukaemia [see chronic myeloid leukaemia]
        granulocytic leukaemia [ see acute myeloid leukaemia ]
        myeloblastic leukaemia [ see acute myeloid leukaemia ]
        myelocytic leukaemia [ see acute myeloid leukaemia ]
        myelogenous leukaemia [ see acute myeloid leukaemia ]
Leukaemia issues for cancer patient
        bone marrow transplant, 132
        continual tests, 130
        death from, 124, 125, 130, 132
        distended stomach, 124
        enlarged spleen, 124
        leukaemia and blood foundation of New Zealand, 131
        long-term survivors, 136, 127, 131
        remission, 126 to 128
        story for toddler, 127
        teenage patient, 132
        terminal, 124
        treatment effects
                                depression, 132
                                exhaustion, 124, 128, 130, 131, 132
                                hair loss, 127
                                heart murmur, 124
                                meningitis, 124
                                nausea, 132
                                recurrent infections, 132
                                shingles, 132
                                sore gums, 124
                                swollen feet, 124
                                thrombotic thrombocytopenic purpura, 128
        young patients, 125, 126, 127, 128, 129, 131, 132
M
Maori
        awareness of services, 49
        breast burial, 80, 83
        concern for, 29, 49, 83, 106
        Ngai Tahu, 83
        Ngati Raukawa, 83
        Rangitane, 83
Medical system issues
                communication between hospitals, 121, 145
                conflicting medical advice, 163
                doctors making diagnosis based on patients age, 1, 23
                hospice, 149, 156
                jargon, 159
                medical disciplinary board, 62, 73, 104, 105
                navigation of, 15, 17, 145
                narrow attitude towards healing, 8, 102
        perception of doctor
        insensitive, 18
        mistrusting, 21
        patient, 16
        supportive, 20
        unsupportive, 2
        vital, 179
        perception of nursing care
                                    insensitive, 150
                                neglect, 3, 150
                                provide comfort, 54
                                supportive, 54, 68, 150, 158
        private health care, 3, 162
        public versus private, 57
Melanoma, 114, 137 to 141
Melanoma patient issues,
        in places receiving no sun, 137
        lung melanoma, 139
        pregnancy increases rate of melanoma growth, 141
        scar, 138
        sunburn experiences, 137
Metaphors of cancer
        battle scar, 139, 153, 154
        cancer Olympics, 59
        hell, 98, 108
        prison sentence, 152
        school, 146Metastatic cancer for
        bowel cancer, 5
        brain tumour, 13        breast cancer
        armpit gland, 62, 92
        bones, 79
        brain, 22, 23
        breast, 19, 22, 25, 27, 31, 36
        lung, 74
        lymph nodes above collarbone, 92
        ovary, 69
        peritoneal cavity, 36
        ribs, 27
        leiomyosarcoma, 123
        lung cancer, 134
        melanoma, 141
        osteosarcoma, 154
        prostate, 161
        rectum cancer, 164
        testicular cancer, 169
Mastectomy issues for patient [see also breast cancer treatments, see also breast reconstruction, see also prosthesis]
        breast farewell ceremony, 80
        burial of breast, 80, 83
        clothes
                                adjusting clothes to hide scar, 81
                                mastectomy swimsuit, advocate for 81
        recovery
                                healing, 69, 47
                        Mastectomy rehabilitation support services, 79,
                        81
                                reclaiming sensuality, 18
                                revealing scars, 81
Mastectomy rehabilitation support services, 79, 81
Misdiagnosis experience, type of cancer,
                brain
                        ineffective diagnostic equipment, 7
                        menopause, 11
                        virus, 13
                breast cancer, 17, 42, 68
                age of woman, 23
                as terminal, 75
                ineffective diagnostic tests, 24, 45, 49, 55, 60
                observe, 24, 55, 68
                patient concerns brushed aside, 62
                rare metastases, 36
                cervical
                        misread slides, 102, 105
                        unpreventable type, 101
                chondrosarcoma,
                        slip disc, 108
                chordoma,
                        past injury, 109
                Hodgkin's disease, 116
                        lump as orf, 116
                Hodgkin's lymphoma, 119
                        asthma, 120
                leimyosarcoma,
                        fibroid, 122
                leukaemia, 124
                melanoma,
                        benign lump, 141
                non Hodgkin's lymphoma
                        eye inflammation, 145
                prostate,
                        rare type of, 161
                        age of, 162
                osteoblastic sarcoma
                        rare type, 151
                osteosarcoma
                        as injury, 153
                squamous cell, 166
                Testicular
                        inflamed, 171
                Yolk sak germ cell, 179
Misdiagnosis issues for patient,
        because of young age, 23, 42, 160, 162
        diagnosed only after
                                several months, 171
                                surgery, 36
        public awareness of possibility of misdiagnosis, 101, 141
        repetitive misdiagnosis, 7, 55, 162
Mole removed, 138, 141
Mother, as caregiver
        explaining death to child, 13
        keeping life as normal as possible, 22, 89
Mouth, treatment effect
        dryness, 79
        infections, 79
        ulcers, 67, 116, 132, 150, 154
Mouth care, 116, 132Multiple myeloma, 142, 143
Multiple myeloma issues for patient
        blood donation, 142
        blood transfusions, 142
        death from, 143
        patient with high pain tolerance, 143
        terminal, 142
N
Narration style, unique
        conversational, 107, 166
        letter, 47, 115
        poetry 27, 111, 145, 146 173
        script, 2
Nerve damage, treatment effect, 73
Neutropenia, treatment effect, 108
Non Hodgkin's lymphoma, 144 to 149
Nose tumour, 150

O

Orchidectomy, 159, 162
Osteoblastic sarcoma, 151Osteosarcoma, 152 to 154Ovaries
        cancer, 155
        removed, 53
P
Pain
        disease progression
                                from bloating, 176
                                severe, 5, 72, 74, 78, 105, 143, 156
                emotional pain, 78
                threshold, large tolerance, 143
                treatments, 3, 72, 81, 101, 116, 120, 121, 148, 162, 166, 175, 179
                                inserting catheter, 26
                                lumbar puncture, 116
                                phantom pain after mastectomy, 55
Painkillers, treatments, 109, 148, 163, 166, 176
        acupuncture, 148
        administered by caregiver, 143
        little needed, 68
        taken off too early, 3, 101Palliative care , 19, 22, 42, 75Pancreas cancer, 156, 157

Paralysis
        partial, treatment effect, 105, 109
        wheel chair temporary reliance, 13, 151, 175Parotid gland cancer, 158Personal websites, 1, 102, 117, 145, 153, 162, 180
Physical limitations,
        coping, 13, 154, 166, 175
        frustrations, 13, 154, 166, 175
        overcoming, 13, 154, 169
Platelet count, 132
        transfusions, 132
Pleurosis, 121
Pneumonia, death from, 27, 130
Pneumonia, during treatments, 132, 148, 149
Professional websites, 1, 3, 50, 57, 101, 103, 131, 144, 159, 160
Prognosis
terminal, 22, 23, 24, 36, 115, 121, 156, 157, 159, 161, 164, 177
        uncertain future, 15, 36, 142, 145
        wrong, 75, 89, 136
Prothesis, 35, 41
        being fitted for, 73, 79
        benefits, 41, 51, 73, 81
        care for, 67
        coming to terms with, 22, 83, 94
        difficulties with, 35
        disadvantages, 35, 41, 67, 68
        early types of, 72, 81
        embarrassing predicaments with, 71
        humour, 41, 51, 71
        no problems with, 66
        reminding of cancer, 68
        size issues, 51, 73, 81
        subsidy, 72
        weight, 41
Prostatectomy, 1, 160, 162Prostate cancer, 159 to 163
Prostate cancer issues for patient
        communication with wife, 159, 163
        contradictory medical information, 163
        diagnosed late, 161, 162
        financial pressures, 162
        impact on relationship, 162
        information searching, 159, 160, 162
        initiating support group, 159
        rare type, 161
        self prescribed treatments, 162
        support from internet information, 1
        terminal, 161
        too young for PSA test, 160
        treatment effects
                        arthritis, 162
                        depression, 162
                 difficult bowel control, 162
                 headaches
                        impotence, 159, 163
                        incontinence, 162
                        scar, 162
                        sensitive eyes, 162
        waiting list for treatments, 162
        young age at diagnosis, 160, 162
Prostate cancer treatments
        alternative treatments, 162
        Australian treatment, 163
        bracytherapy, 163
        complementary treatments, 160
        hormone blockade, 159, 160
        orchidectomy, 162
        prostatectomy, 162
        radiation, 162
Psychological research, self help in healing, 69
Q
Quantum booster, 10
R

Radio frequency ablation, 123
Rare cancer type
        chordoma, 109
        inflammatory breast cancer, 42
        osteoblastic sarcoma, 151
        prostate cancer, 161
        secondary breast cancer in peritoneal cavity, 36
Rectum cancer, 2
Religion
        anger at God, 154
        church support for cancer patient and family, 116, 167
        faith in God's care, 128, 129, 144, 154, 156, 157
        faith God would heal, 167
        minister, as cancer patient, 156, 157
        minister as caregiver, 143
        parents releasing daughter to God, 132
        reasons God may not heal, 156
Remission, types of cancer
breast, 3, 15, 17, 18, 28, 29, 40, 48, 50, 53, 54, 55, 56, 58, 59, 60, 62,         67, 68, 69, 71, 73, 76, 77, 78, 79, 81, 82, 83, 85, 89, 92, 99, 100
        cervical, 101, 104, 106, 107
        chondrosarcoma, 108
        chordoma, 109
        Ewing's sarcoma, 114
        Hodgkin's disease, 116
        Hodgkin's lymphoma, 119
        leiomyosarcoma, 122
        leukaemia, 128
        lung melanoma, 139
        non Hodgkin's lymphoma, 145, 148, 147
        nose, 150
        ovaries, 155
        parotid gland, 158
        prostate, 159, 160, 162, 163
        testicle, 169
        unnamed, 174, 175,178
        yolk sak germ cell, 179
Remission issues for cancer patient [see also impact of cancer; see also long term survival of cancer]
        activities during
                gardening, 113
                return to work, 9, 14, 144, 173
        cancer recurrence, 144
        death following recurrence, 144, 173
        fear of recurrence, 50                Rhinotomy, 150
S

Samoan, 58, 59
Scar issues for cancer patient
        family reaction to scar, 87
        hide scar, 81, 4
        non concern over scar, 46
        radiation scar, 72
        revealing scar, 94
        social effect of scar, 112
        surgical scar 11, 53, 66, 81, 110, 138, 145, 155, 162, 168
        treating scar, 95
Scar metaphors
        battle scar, 139
        emotional scar, 139, 155
        smile, 40
School, after diagnosis and during treatments
        friends supportive, 7
Septicaemia, 132
Skin, treatment effects
        burns, 88
        darkening, 179
        grown over shunt, 116
        irritation, 84
        itchy, 145
        skin graft , 4, 68, 81
Sister perspective, 125, 87
        brother died from cancer, 10
        sibling's grief, 10Smoking
                stigma, 89
Social effects
        friends dying of cancer, 25, 114, 126, 140
        isolation, 2
        meeting other cancer patients, 11, 127
        reunited friendships, 26, 126
        socialised, 69, 145Son perspective, 37, 161
Squamous-cell-carcinoma, 166, 167
Steroids effect,
        changes to voice and hair growth, 72
        increased appetite, 132
        weight gain, 174
Support issues
        advocacy, 7, 181
        counselling, 17
        emotional, 100
        family and friends, acts of, 114, 115, 120
        financial, 130, 145
        for young people with cancer, 182
        government, 168
        hospice, 74, 149
        isolation from, 74, 88, 164
        medical professionals, 20, 48, 67, 68, 76
        other cancer survivors, 91
        school, 169
        support teams, 24, 150
Support groups
        patients attending, 68, 94, 124, 130, 159
        patients initiating, 124, 130, 159
Synovial sarcoma, 168
T

Terminal prognosis, issues, 12, 22, 24, 36, 75, 79, 115, 136
        acceptance of, 22, 24, 36
        devastated not seeing children grow up, 24, 142
        keep living, 22, 143
        look forwards to good time with friends, 115
        lucky to be going to heaven, 154
        misdiagnosed as, 89
        move closer to family, 36, 143
        nights difficult, 115
        positive spirit, 22, 143
        retire, 36
        survival, 5, 82Testicular cancer issues for patients
        cancer, 169 to 171
        harshest chemotherapy used in Australasia, 171
        testicle removed, 169, 170, 171
        not responding to treatments, 171
Titanium joint implant, 151, 153, 175
Tracheotomy, 128
Trastuzumab [see Herceptin]
Turban, public reaction, 49
U
Uterus
        removed, 122
V
Vomiting, treatment effects,
        Blood, 2
        Continual, 2, 165
        Radiation induced, 105
                                        W

Wife of cancer patient, 143, 156
                coping as a witness to experience, 143, 156, 176
                closer together, 163
                concern over future care of family, 22
                diagnosed with cancer after         husband died, 74
                delivering medication, 143, 156, 176
                isolation from society, 164
                organising funeral, 156
                practical issues for support, 143, 156, 176
                        stigma of death, 164
Wig, 29, 46, 50, 132, 151
                buying a wig, 132, 151
                dislike, 46
                humour, 29
                subsidy, 81
Y

Yolk sak germ cell, abdomen, 179